Tag Archives: Survivor stories

Lloyd’s Life After Cancer: ‘I’m a Better Man Than I Ever Was’

By Joseph Hanneman
Racine Journal Times

A group of sparrows perched on the edge of the bird feeder outside Lloyd Miller’s window, pecking at the seeds like there was no tomorrow.

Oblivious to the man watching them from just feet away, the birds went about their business, then flew away. They are a living reminder of just how much Miller’s life has changed in the past four years.

This story was part of an award-winning 12-page special section published in The Journal Times  on Dec. 1, 1991. The project won awards from the Wisconsin Newspaper Association, the American Cancer Society and the American College of Radiology.

For much of his life, the 71-year-old Miller never had time for little hobbies like bird watching. From his early days as a cavalry instructor in the U.S. Army to his career as a salesman and Racine’s city development director, Miller was a busy man.

Then came cancer.

“I never had a bird feeder before. Now, I’m feeding the birds at $10 a week,” Miller says with a chuckle. “I’ll have to win the lottery.”

Aside from the pinkish patch of scar tissue on his head and his lack of hair, you would never know this man tangled with a rare, life-threatening cancer.

He has a firm handshake, a hearty belly laugh and a warmth that twinkles from beneath his spectacles.

Life has changed
The bird feeder is one of the little ways Miller is a different man now. He isn’t bothered by the little things anymore. He’s more tolerant. He finds it a lot easier to tell his wife and friends that he loves them.

And although life has brought him persistent heart problems and a cancer that came back four times, Miller considers himself lucky.

Lloyd Miller never used to have time for hobbies. Now he’s a regular bird-feeder. — Journal Times photo by Mark Hertzberg

“I do not consider myself dying of cancer,” he says, softly tracing an invisible pattern on the kitchen table with his index finger, “but living despite it. I do not look at each day as a day closer to death, but another day to be appreciated and enjoyed.”

Lloyd Miller is a cancer survivor.

He is one of the 50 percent of cancer patients who live through the terrifying diagnosis, the fear, the uncertainty, the sickening treatments and the real risk of death. He is part of a growing group with a determination to live life fully, with a new appreciation for what was almost lost.

Miller’s rare form of cancer is in remission, four years after it was discovered. And although there still is a risk the cancer could come back and attack his lungs, he doesn’t let it worry him.

“I feel so comfortable, it’s almost a sin. I don’t think about it every day.”

But for much of the past few years, Miller had little choice but to think about cancer.

The first inkling of trouble came in 1987 while he was on a cruise with Sue, his wife of 16 years. A sunburn-like patch of blisters appeared on the left side of his scalp. It didn’t concern him, until his eye began to swell so badly he had to soak it to get it to open. Upon returning to Racine from Miami, Miller went to see his doctor in Kenosha. The doctor took a biopsy, then delivered the kind of heart-stopping news everyone fears.

Lloyd Miller’s story as it appeared in the Journal Times on Dec. 1, 1991.

“I knew I was in trouble. I expected bad news. It was bad news. Believe it or not, I was afraid,” he said. “The word ‘cancer’ just sent chills through me.”

The doctor referred Miller to the University of Wisconsin Comprehensive Cancer Center in Madison, one of the nation’s major cancer centers, with a medical staff of 350.

Doctors took 60 biopsies from Miller’s scalp in an effort to find what kind of cancer had taken hold.

Rare cancer diagnosed
The diagnosis was angiosarcoma, a rare cancer of the blood vessels that spreads to the connective tissues. Miller had extensive tumors throughout the left side of his scalp.

Doctors started Miller on a regimen of radiation treatments using a high-tech system in which treatments are planned using 3-D computers that help aim the radiation most effectively at the cancer. He traveled to the UW daily for treatments — journeys that would eventually total 33,000 miles.

The hospital staff drew targets with ink on his now-bald head. They took measurements and calibrated the 6-million-volt radiation machine.

The treatments were terrifying for Miller. Much of his head was covered in a lead mask that shielded healthy tissue. For a man with severe claustrophobia, the enclosure was pure hell.

“I would have killed them if I could have gotten loose,” he said. “When I got out of there, I said, ‘Never again, not me. I’ll die.’ ”

For his next trip, doctors gave Miller what he called “goofy pills” that helped him relax so much before treatment that by the time he arrived in Madison, he didn’t care what happened.

Treatments burn the scalp
The 30 treatments burned Miller’s scalp, causing an unsightly, migrating sore that covered a quarter of his scalp before it started to recede. But the therapy worked and the tumors died off.

Miller said death crossed his mind during those first days in treatment.

But his main physician, Dr. Timothy Kinsella, deputy director of the cancer center, told Miller to let him worry about the cancer.

“I’ll tell you when to worry,” Kinsella said. Those six words put Miller at ease. Kinsella never told Miller to worry.

“He was the Good Hands doctor,” Miller said, cupping his hands like they do on the Allstate insurance commercials. “He made me understand I was going to be all right.”

Despite the daily doses of radiation, Miller kept up his work schedule.

Staying on the job was important because, as Miller put it, “If a guy lies down in bed, I think he’s a goner.”

Shortly after the first round of radiation, doctors discovered nodes on the right side of Miller’s head. The cancer was back, which meant 30 more visits to the linear accelerator.

Eventually, the cancer spread to both sides of Millers’ neck and on the center of his head. Each time it appeared, Kinsella beat it back with radiation.

Miller became quite a regular on the first-floor clinic at the cancer center. He made the coffee in the waiting room, and brought Racine kringle for the staff. When he wasn’t in treatment, he spent time in the pediatric cancer ward.

One day, Miller was charged with cheering up a young boy who was quite sick from his cancer treatments. Miller pulled out a toy ball that laughed with the resonance of Ed McMahon when it was tossed into the air. “That was my secret weapon,” Miller said. “He liked it so much I gave it to him.”

They still remember Lloyd Miller at UW Cancer Center.

Help and prayers
And so Miller has beaten the odds, it would seem. It’s only now that one of his local doctors told him that after the initial cancer diagnosis, he wasn’t sure Miller would survive.

Now he spends time as a freelance real estate development consultant and likes to play golf at the Kenosha country club. Miller says he got through his ordeal with cancer with a lot of help from scores of friends and a lot of prayer.

“I think I’m a better man now than I ever was,” he said. “I’ve come so close to the unknown.”

His health has not been without complications since the cancer therapy stopped. He recently underwent his 11th balloon angioplasty, a procedure in which a tiny balloon is inflated in the arteries to clear blockages.

Miller’s story caught the attention of the American Cancer Society, which profiled him in an hourlong documentary on cancer survivors in 1990. The program also featured a 23-year-old student who lost his leg to cancer, then ran across country to raise money for cancer research.

Tears well up in Miller’s eyes when he watches the tape, as he watches his wife describe him as “our hero, Lloyd,” and as he watches himself talk about cancer.

“An experience like this lets you know what life’s all about,” he said. •

EPILOGUE: Lloyd G. Miller died on March 6, 2004 at his retirement home in Orlando, Fla. He was 83.

Jeff Peterson Overcame Testicular Cancer: ‘A New Outlook on Life’

By Joseph Hanneman
Racine Journal Times

 Jeff Peterson will never forget Valentine’s Day 1985.

A battalion chief with the Racine Fire Department, Peterson was on his way to St. Mary’s Medical Center on a routine call that night. En route, he noticed a sharp pain in his groin, a pain that steadily worsened. By the time he arrived, he needed medical attention.

“By the time I got to St. Mary’s, I could hardly walk,” Peterson, 49, recalled.

Doctors who examined him originally thought he was suffering from torsion, a painful twisting of the vas deferens leading from the testicles. But efforts to relieve the pain were useless.

This story was part of an award-winning 12-page special section published in The Journal Times  on Dec. 1, 1991. The project won awards from the Wisconsin Newspaper Association, the American Cancer Society and the American College of Radiology.

Peterson underwent exploratory surgery that night at St. Mary’s. He was under local anesthetic and was able to ask the surgeon what he saw. There were lumps on one of the testicles, he was told, and it could be cancer.

“I thought I was going to die,” he said. “I thought I had a death sentence.”

Surgeons removed the diseased testicle, which they believed was the original site of the cancer. He went home the next day, still reeling from the diagnosis.

Smoke inhalation a factor?
Peterson did not smoke and he wondered how he could develop such a rare cancer, which strikes about 130 Wisconsin men a year. But he recalled his early days in the fire department, days when “you were a candy ass” if you wore an oxygen mask to a fire scene.

More than once, he recalled coughing up black phlegm after coming out of a fire. Now, he wonders what those early days did to him.

Peterson was admitted to the Mayo Clinic in Rochester, Minn., where doctors put him through a battery of tests. The news was not encouraging. The cancer had spread to Peterson’s lungs and the tumors were growing fast.

“They had grown from the size of the head of your pen to the size of a small orange in three weeks or so,” he said.

Jeff Peterson on duty with the Racine Fire Department. — Journal Times photo by Mark Hertzberg

Doctors decided to attack the lung tumors with chemotherapy. Peterson returned to Racine and went on a regimen of chemotherapy. One week of treatments was followed by three off weeks to let his body recover.

Peterson lost his hair from the nauseating treatments, but he decided to go back to work at the fire department, where he was in charge of training programs. Being at work was therapeutic.

“I found if I sat at home, the only thing I could think about is, ‘Am I going to die?’ ” he said. “I needed a diversion. That diversion was going to work.”

Diversion is not all he found at the fire department. He also found inspiration and the will to keep fighting.

Heroic inspiration
The source of the inspiration was Dan Christensen. Christensen was always the first to greet Peterson and ask him how he was doing. Christensen told him things would work out, he’d be OK.

Encouraging words are always good to hear, but Christensen’s words carried extra meaning for Peterson, because his fellow firefighter was dying from amyotrophic lateral sclerosis — Lou Gehrig’s disease.

“It was just remarkable, a person could take life, so little of which he had left, and still give so much to the people he had around him,” Peterson said.

Even as Christensen lost his motion control as his muscles deteriorated from the disease, he kept up the pep talks for Peterson. He visited him in the hospital and always had an encouraging word. He may not have known it at the time, but Christensen, who died in August, helped save his friend’s life.

“He made me keep on fighting,” Peterson said. “That’s a major part of beating cancer. You have to take one day at a time.”

There was plenty of fight ahead for Jeff Peterson.

The nausea and vomiting from chemotherapy put him back in the hospital. He developed blood clots in his lungs. Then, he developed a fungus-like disease in his lungs that put his life in jeopardy.

Jeff Peterson’s story as it appeared in the newspaper on Dec. 1, 1991.

He remembers that meeting with doctors well. The combination of complications could be fatal. The doctor had tears in his eyes.

“ ‘You’re not rid of me yet,’ ” Peterson said he told the doctor. “I made up my mind I was not going to be that statistic. I was going to be a statistic on the positive side.”

Doctors started treating the lung fungus with steroids, but the going was still rough. Peterson got angry when some of his visitors treated him like he was a sure bet to die.

No giving up
There were a few times in the hospital, when he was weary from the chemotherapy, that Peterson felt like giving up. Dying. But then sleep would come for a few hours, putting a little more fight in his soul.

By late 1985, Peterson turned the corner on his disease. The tumors responded to therapy and the fungus was subsiding. Peterson was winning.

That was six years ago. Peterson has been cancer-free ever since. The disease challenged him and nearly killed him, but it also gave him a sense of how precious life is.

“Cancer gives you a new outlook on life. Every day to me is a bonus,” he said. “I used to take a lot more things more seriously than I do now. You know the time here is so short, you should make the best of it every day.”

These days, Peterson spends part of his time delivering talks to high school boys about testicular self-exams, something even he was ignorant about before he got cancer.

“It’s a subject not many kids want to talk about, but it’s got to be done,” he said. “That’s one of the points I was extremely angry about. My own physician never told me to do a testicular exam.”

He also spends time whenever called upon to help cancer patients adjust to the disease. He won’t let them give up, just like Danny Christensen wouldn’t let him give up. One man he saw recently was ready to throw in the towel, but Peterson convinced him it was worth the fight. The man is doing fine now.

“That’s one of the boosts that makes me smile every day,” he said. •

EPILOGUE: Peterson retired from the Racine Fire Department in early 1999 after more than 30 years as a firefighter, including a stint as chief.